It has been estimated that half of the world’s population afflicted with Hemophilia lives in India, but only 15 per cent of them have been identified so far, with the remaining 85 per cent staying undiagnosed and untreated. Detection generally happens only at the time of an injury or an episode of unnatural bleeding.
It has been estimated that half of the world’s population afflicted with Hemophilia lives in India, but only 15 per cent of them have been identified so far, with the remaining 85 per cent staying undiagnosed and untreated. Detection generally happens only at the time of an injury or an episode of unnatural bleeding.
“In Rajasthan, more than 1,000 patients are suffering from Hemophilia. Out of these, 60% patients face chronic condition which may involve 3-4 times bleeding incidences in a month. “Due to lack of awareness, around 85 per cent patients have not even diagnosed or registered for treatment,” Dr Ashok Gupta, Medical Superintendent, JK Lon Hospital said.
Hemophilia is the oldest known hereditary genetic blood disorder that reduces the ability of the blood to clot. Patients with Hemophilia do not have enough clotting factor that controls bleeding. As a result, even a slight injury can cause excessive bleeding, putting the patient’s life at risk. Hemophilia mostly affects men, with 1 in 5,000 of them being born with the condition and the condition affecting 1 in 10,000 people at an overall population level.
“People with Hemophilia (PwH) do not bleed more profusely or faster than normal. They bleed for a longer time than others after an injury. If they bleed inside their body, it can cause damage to the internal organs and tissues, creating a life-threatening situation. Two of the most common forms of Hemophilia are A and B,” said Dr Gupta.
However, with the help of Mukhyamantri Nishulk Dawa Yojna, patients are being treated at Medical colleges and few district hospitals as the required factors are available in these places. Also, at JK Lon hospital in Jaipur, there is a daycare centre where patients are getting the required treatment in Hemophilia ward.
Need To Register
There is a need to register all patients suffering from Hemophilia and develop more comprehensive Hemophilia treatment centres across Raj. The treatment should also move from episodic supplementation to regular prophylaxis.
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}
 "Hemophylia")
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}
)
){kind=small}
){kind=small}
)
)
)
)
)
){kind=small}
){kind=small}
){kind=small}
){kind=small}
){kind=small}